He's inquisitive, into everything, outgoing, determined, endearing and finally learning some words. The best part? He's healthy. I haven't posted about Hirschsprungs in a long time, largely because he began to thrive and we were mercifully able to allow it to sink into the background of living. We have experienced another bout with enterocolitis in December 2015 (when … Continue reading Tyce is 2.
Babies are incredibly resilient.
As I was organizing my Hirschsprungs entries recently, I realized that my posts about Tyce's Hirschsprungs journey continually receive visitors. My heart goes out to those of you who find these entries as the result of a Google search, working to educate yourself about Hirschsprungs, maybe for your child? Recently I re-googled the disease, aware … Continue reading Enterocolitis after Hirschsprungs Pull-Through Surgery
It has been two weeks, to the day, since Tyce's surgery. Many times each day, someone asks me how he's doing. I have been so overwhelmed by how loved we are, how intentionally people were caring for and about our family. And I've answered you all the same: I think he's doing good! I really … Continue reading We Did It Together (Tyce’s Surgical Follow-Up)
We got home Saturday around 6:30pm, feeling very reminiscent of the first day we brought Tyce home. After all the heightened attention to him, to lay him comfortably in his rocker and work on menial tasks like unpacking is oddly difficult. Part of the way home, I felt dangerously close to a panic attack--a sensation … Continue reading Home: And then it was Monday.
2:45am (estimated) I suppose this is quite understandable, but at some point since this whole thing began, I have become exhausted. I didn't really notice it until this moment (of course, I'm writing this much later), but Tyce started crying to eat and I couldn't even fathom the idea of getting up. I said Nick's … Continue reading After Surgery: Recovery Day 2
5:25am After Tyce spending maybe 6-8 hours in his hospital bed, sleeping (sometimes peacefully, sometimes fretfully), Nick and I were able to grab a few hours, though we are certainly far from rested. We have not yet been able to get a hospital room upstairs, so we are sleeping on these blue pleather recliners that … Continue reading After Surgery: Recovery Day 1
It's 8:30 and we are on the road. We stopped for Starbucks even though neither one of us have an appetite. It's comforting. I'm clutching my cup as Nick puts on a playlist of songs he picked for this ride. He hums and I cry a little. I'm not afraid, but the emotions are still … Continue reading Surgery Day (Infant Hirschsprungs)
Call? Don't call? They said they're on it. But what if he falls through the cracks? A week of irrigating his bowels, morning and night, to help his little plumbing finish the job. They call--results are in. Can we do surgery tomorrow? Ironically, instincts all week were that it would be tomorrow. So I'm … Continue reading The Night Before
First, about fifteen minutes into our drive to Hershey, this voicemail popped up on Nick's phone (somehow we missed the call): The message is broken up, but it confirms that Tyce will have access to our insurance policy for his care. You guys, if I haven't said it already a thousand times, let me said … Continue reading Biopsy